Archive - April 2016

1
Siblings
2
Facts About Epilepsy
3
More Than You (Or I) Ever Wanted to Know About Genetics

Siblings of people with special needs see the world through the eyes of someone who knows unconditional love and believe in endless possibilities.

~Chasing the Cleavers

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Just a few weeks ago, we celebrated Purple Day to raise awareness for epilepsy. Campbell has two types of seizures: partial seizures and primary generalized seizures.  She has also gone into status epilepticus which is a life-threatening seizure.  Earlier this week, she experienced a seizure that lasted over 30 minutes which is considered status epilepticus. Fortunately, she pulled out of it and only required a brief stay in the ER but arrived in an ambulance. She loves to make a grand entrance. I thought I’d take some time to share some interesting facts about epilepsy.
  • 65 million people have epilepsy in the world
  • 3 million of those live in the United States
  • 1 in 26 people in the US will develop epilepsy
  • 150,000 new cases of epilepsy just in the US each year
  • ONE-THIRD of people live with uncontrollable seizures (meaning no medicine or other treatments work)
  • 6 out of 10 people have no known cause for their seizures
To learn more about epilepsy, visit www.epilepsy.com.  They have wonderful resources and information for both individuals with epilepsy, parents and families.

More Than You (Or I) Ever Wanted to Know About Genetics

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The last few weeks have been filled with several doctor appointments for Campbell and I’ll admit my brain is on information overload.
One of those appointments was to the geneticist that involved over two hours of updating her medical information along with listening to her doctor explain the newest advances in the fascinating but complex world of genetics.
I’ll be honest, I’ve had trouble with trying to explain everything to family, friends and her therapists, much less writing this blog post without confusing everyone and ultimately myself. Sometimes the more you rehash something, the more questions you have.

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