Rare Disease Day is an international awareness-raising event. Campbell was diagnosed with Bohring-Opitz Syndrome in October of 2016 after a ten-year search for a diagnosis. There are fewer than 80 people in the world diagnosed with this rare genetic syndrome. To learn more, visit www.bos-foundation.org.  Share this post to raise awareness and consider making a donation. The Bohring-Opitz Syndrome Foundation is dedicated to improving the lives of those living with BOS through the establishment of a medical advisory board, awareness initiatives, and parent/patient advocacy.

About the author


Michelle is a writer based in Richmond, KY who is trying to navigate special needs parenthood and life in an imperfect world, all while keeping her sanity. She is on the board of the Bohring-Opitz Syndrome Foundation and is a contributor to The Mighty and The Today Show Parenting Team. She’d love to hear from you! Send her an email at michelle@chasingthecleavers.com.

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