Tag - Bohring-Opitz Syndrome

Are You #BOSAware?
Rare Disease Day 2017

Are You #BOSAware?

Rare Disease Day is an international awareness-raising event. Campbell was diagnosed with Bohring-Opitz Syndrome in October of 2016 after a ten-year search for a diagnosis. There are fewer than 80 people in the world diagnosed with this rare genetic syndrome. To learn more, visit www.bos-foundation.org.  Share this post to raise awareness and consider making a donation. The Bohring-Opitz Syndrome Foundation is dedicated to improving the lives of those living with BOS through the establishment of a medical advisory board, awareness initiatives, and parent/patient advocacy.