Tag - caregiver stress

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It Takes a Village (and then some) to Raise a Child with Special and Complex Needs
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Do the best you can…
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Is That A Minibar in Your Closet? Taking a Moment for Yourself

It Takes a Village (and then some) to Raise a Child with Special and Complex Needs

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Campbell enjoying a puppet show by a youth group during the building of a handicap ramp for our home by Red House Baptist Church
There’s an African proverb you may have heard, “it takes a village to raise a child.” Hillary Clinton wrote a book in the late 90s using that concept and in recent years, Pope Francis had Italian school children chanting the mantra.
I’m sure most of you can probably agree this is true with any child. Parents with children who have special needs live this reality daily and may even add to the list of villagers.
It takes a village, several specialists, therapists, maybe the next village over and having the National Guard on standby isn’t a bad idea to be honest.

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“Do the best you can until you know better.  Then when you know better, do better.”

~Maya Angelou

 

Is That A Minibar in Your Closet? Taking a Moment for Yourself

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I’ll admit that there are some days; all I can do is step into the closet, close the door and cry.
Granted, I don’t get to stay in there too long but it is a nice escape.
Here’s an example of an instance when I’ve used this coping method.
I’ve been on hold with the insurance company for 38 minutes and got cut off only to call back and be put on eternal hold again.
Next, I was repositioning Campbell in the bed and her feeding tube got caught and was pulled out. I calmly gathered everything to quickly put it back in because those darn g-tube sites close up quickly.

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